and Conjoint Efforts
Adult Down Syndrome Summit
The NTG collaborated with the National Down Syndrome Society on a series of conferences, termed the Adult Down Syndrome Summits. The first was in Arlington, Virginia in 2018 and the second in Detroit, Michigan in 2019. The third in 2020 was virtual conference due to the COVID-19 corona virus pandemic. The fourth in 2021 was held in Jacksonville, Florida. A mini-adult summit, built into the NDSS Conference, was held in November 2022 in Cincinnati, Ohio. FMI: Check the NDSS website
COVID-19 Q & As
The NTG collaborated with several US based Down syndrome organizations and foundations (Global Down Syndrome Foundation, Down Syndrome Medical Interest Group-USA, LuMind IDSC Down Syndrome Foundation, National Down Syndrome Congress, and National Down Syndrome Society) on number of sequentially issued Question and Answer (Q&As) addressing what families, organizations, and persons with Down syndrome wanted to know about the impact of COVID-19 on people with Down syndrome. FMI: See the COVID-19 & ID page
ID and Dementia ECHO Program with GWEPs
The NTG is collaborating with the Geriatrics Workforce Enhancement Programs (GWEPs) at the University of Rhode Island and Virginia Commonwealth University to undertake a series of ECHO programs on intellectual disability and dementia. These efforts are supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant numbers U1QHP28737 and U1QHP28744 to the universities. A descriptive article about the first series is available here.
Health Matters Program
The NTG is collaborating with the Health Matters Program at the University of Illinois at Chicago on several efforts, which have included working together on a national survey of disability services providers as to the impact of COVID-19 corona virus on their clientele, staff, and services, and is currently part of a national education and public awareness grant program, funded by the Centers for Disease Control, to affect brain health among persons with intellectual disability and reduction of the development of dementia. FMI: Check the Health Matters website
Family Caregiver Newsletter
The NTG jointly produced and distributed a quarterly Newsletter for caregivers together with the National Down Syndrome Society. Current production has been suspended. Archived copies can be accessed on our Family Newsletter page.
Down syndrome & Alzheimer's booklet
The NTG collaborated with the National Down Syndrome Society on the developmental of a booklet on Down syndrome and Alzheimer's disease. The booklet is available on the NTG's Family Support page.