NTG Collaborations & Conjoint Efforts

Family Caregiver Newsletter

The NTG jointly produces and distributes a quarterly Newsletter for caregivers together with the National Down Syndrome Society.  Copies can be accessed at our Family/Advocacy page

Adult Down Syndrome Summit

The NTG collaborated with the National Down Syndrome Society on a series of conferences, termed the Adult Down Syndrome Summits.  The first was in Arlington, Virginia in 2018 and the second in Detroit, Michigan in 2019.  The third which was to be held in Scottsdale, Arizona in 2020, was converted to a virtual conference due to the COVID-19 corona virus pandemic.  FMI: Check the NDSS website

COVID-19 Q & As

The NTG collaborated with several US based Down syndrome organizations and foundations (Global Down Syndrome Foundation, Down Syndrome Medical Interest Group-USA, LuMind IDSC Down Syndrome Foundation, National Down Syndrome Congress, and National Down Syndrome Society) on number of sequentially issued Question and Answer (Q&As) addressing what families, organizations, and persons with Down syndrome wanted to know about the impact of COVID-19 on people with Down syndrome.  FMI: See the COVID-19 page

ID and Dementia ECHO Program with GWEPs

The NTG is collaborating with the Geriatrics Workforce Enhancement Programs (GWEPs) at the University of Rhode Island and Virginia Commonwealth University to undertake a series of ECHO programs on intellectual disability and dementia. These efforts are supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant numbers U1QHP28737 and U1QHP28744 to the universities. A descriptive article of the first series is available here.

URI-VCU ECHO cover Aging in Action-webve
Health Matters Program

The NTG is collaborating with the Health Matters Program at the University of Illinois at Chicago on several efforts, which have included working together on a national survey of disability services providers as to the impact of COVID-19 corona virus on their clientele, staff, and services, and is currently part of a national education and public awareness grant program, funded by the Centers for Disease Control, to affect brain health among persons with intellectual disability and reduction of the development of dementia.  FMI: Check the Health Matters website

Down Syndrome & Alzheimer's booklet

The NTG collaborated with the National Down Syndrome Society on the developmental of a booklet on Down syndrome and Alzheimer's disease.  The booklet is available on the NTG's Family/Advocacy page.