Care Management Resources

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Practical Guidelines for Care of Persons with Down Syndrome and Dementia

Dr. Gerald Kerins' practical guidelines for persons who provide supports and services for people with Down Syndrome and dementia. [University of Connecticut Health Center, May 1998].  Posted by the Connecticut Department of Developmental Services.  Link to Guidelines

Community Guidelines for Structuring Community Care and Supports for People with Intellectual Disability Affected by Dementia

National Task Group on Intellectual Disabilities and Dementia Practices (NTG) in the United States adopted this set of practice guidelines covering the period from when suspicions are aroused to when care ends with eventual death. Drawn the research literature as well as clinical experiences and demonstrated best practices, the guidelines delineate what actions should be undertaken and are presented in a manner that reflects the progressive nature of prevalent dementias.  Issued April 2013.

Working Resources List on Dementia Care Management and Intellectual Disability

Working bibliography of articles, papers, book chapters, reports, etc. related to dementia and intellectual disability.  [University of Illinois at Chicago]. (continually being updated)

Link to bibliography

Intellectual and Developmental Disabilities and Dementia: Practical Strategies for Professionals

McCallion, P., Knowles, M., & Gould, E. (2019). Intellectual and developmental disabilities and dementia: Practical strategies for professionals. National Alzheimer’s and Dementia Resource Center for the U.S. Administration on Aging.

Link to web source page

A Guidance Document on Dementia in Persons with Intellectual Disability

Prepared by the Faculty of Learning Disability Psychiatry, this document provides guidance to persons working in clinical settings with persons with an intellectual disability and to their families. [Colleges of Psychiatrists of Ireland, Feb. 2014]

Link to guidance document.