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Down Syndrome
and Dementia
Down Syndrome & Dementia Resources
The NTG has been involved in efforts to better advocate for supports to adults with Down syndrome and and their families and provide information on dementia assessment and supports. These are some publications and documents that may be of use.
The National Task Group on Intellectual Disabilities and Dementia Practices consensus recommendations for the evaluation and management of dementia in adults with intellectual disabilities
Resource document
Importance in Overall Health in Adults with Intellectual Disability and Dementia
Educational Presentation
CMS decision on Aduhelm: An Explainer by LuMind IDSC
Resource document
Aducanumab: Panacea or Risk for Adults with Down Syndrome
Conference presentation
Aducanumab and Persons with Down Syndrome: What Do We Do Now?
Resource document
Evaluation of the National Task Group-Early Detection Screen for Dementia: Sensitivity to 'Mild Cognitive Impairment' in Adults with Down Syndrome
Journal article
Clinical and biomarker changes of Alzheimer’s disease in adults with Down syndrome: a cross-sectional study
Journal article
Further understanding the connection between Alzheimer’s disease and Down syndrome
Journal article
Down syndrome disintegrative disorder: A clinical regression syndrome of increasing importance
Journal article
Regression and loss of skills in adolescents and adults with Down syndrome
Resource video
New definition of unexplained regression in Down syndrome proposed
Journal article
Unexplained regression in Down syndrome: 35 cases from an international Down syndrome database
Journal article
Catatonia in Down syndrome: Systematic approach to diagnosis, treatment and outcome assessment based on a case series of seven patients
Journal article
Booklet on Alzheimer's Disease and Down Syndrome
Caregiver resource guide
Aging and Down Syndrome: A Health & Wellbeing Guidebook
Caregiver resource guide
Down Syndrome & Dementia News
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