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The NTG Canadian Consortium Presents - Down Syndrome & Alzheimer's: Ken's Story

Updated: Jan 8, 2023


Book cover Hello, My Name is Ken

The NTG Canadian Consortium with support from Reena, an organization supporting people with intellectual disabilities and their families in Southern Ontario, hosted its first webinar on November 24, 2020, featuring famed author Diana Frizzell.

"A life lived, a journey taken, an ending no one wanted. Ken had Down syndrome and, as he aged, he developed Alzheimer's. He was only 48 years old. Ken's sister and author of "Hello, My Name is Ken" shares her family’s experiences trying to support Ken and access needed health and support services.

Diana’s hope is that their story will inspire changes we need to make in our healthcare and community services to provide the level of care, empathy, love and understanding required for adults aging with Down Syndrome and affected by Alzheimer’s."

The link below leads to the webinar's recording, offered free with Diana's permission. Please share with families, friends, neighbors and service providers.



Author Diana Frizzell and brother Ken

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