Resources for Professionals

CMS issues best practices toolkit for nursing homes to combat COVID-19

Recently, the CMS released a new toolkit to combat the COVID-19 pandemic within nursing homes. The toolkit builds upon previous actions taken by CMS, which provide a wide range of tools and guidance to states, healthcare providers and others during the public health emergency. Additionally, CMS has contracted with 12 Quality Innovation Network-Quality Improvement Organizations (QIN-QIOs) to work with providers, community partners, beneficiaries, and caregivers on data-driven quality improvement initiatives designed to improve the quality of care for beneficiaries across the United States. The QIN-QIOs are reaching out to nursing homes across the country to provide virtual technical assistance for homes that have an opportunity for improvement based on an analysis of previous citations for infection control deficiencies using publicly available data found on Nursing Home Compare. This effort augments the CMS's five-part plan to ensure safety and quality in America’s nursing homes and recent agency efforts to combat the spread of COVID-19 within these facilities.  [Click on image]

Bibliography on Dementia Care Management and Intellectual Disability

To search on topics or key words use the FIND function in your Adobe Reader.  Articles are listed in alphabetical order by the last name of senior author. The bibliography is updated periodically. Included are peer-reviewed articles, book chapters, videos and toolkits, and grey publications. To submit additions contact authorFor bibliography click on image.

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National Core Indicators Data Base

Report on Characteristics and Outcomes of Older Adult with Intellectual and Developmental Disabilities (March 2020). Report also covers information on adults with ID and dementia. Report notes that of 24,453 adults, 1.1% are adults with dementia under age 55, 6.4% are 55-64, 8.5% are 65-74, and 19.0% are age 75+  For copy of report click on image.

SAMHSA Guidance on Use of Antipsychotics with Adults with ID and Dementia

Report on Characteristics and Outcomes of Older Adult with Intellectual and Developmental Disabilities (March 2020). Report also covers information on adults with ID and dementia. Report notes that of 24,453 adults, 1.1% are adults with dementia under age 55, 6.4% are 55-64, 8.5% are 65-74, and 19.0% are age 75+  For copy of report click on image.

Working Resources List on Dementia Care Management and Intellectual Disability

An extensive reference bibliography covering research and practice journal articles, books, videos and other media, as well as tool kits related to care management and intellectual disability. Items are listed in alphabetical order by first authors last name. 

 

The bibliography is posted as a PDF file - to search on key words, use the FIND function in Adobe.

What is Dementia

An illustrated booklet, produced by Down Syndrome Scotland, to explain what is dementia to persons with an intellectual disability

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Living with Dementia

An illustrated booklet, produced by Down Syndrome Scotland, which explains what it means when a family member has dementia; designed for caregivers of persons with an intellectual disability.

Edinburgh Principles

A historical article that covers the Edinburgh Principles -- seven statements identifying a foundation for the design and support of services to people with intellectual disability affected by dementia, and their carers. The accompanying guidelines and recommendations document provide an elaboration of the key points associated with the Principles and is structured toward a four-point approach: (a) adopting a workable philosophy of care; (b) adapting practices at the point of service delivery; (c) working out the coordination of diverse systems; and (d) promoting relevant research.

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This section is under development - 

 

The NTG has also posted some useful publications assembled by other organizations; these materials include:

•   •    Aging and Down Syndrome: A Health & Wellbeing Guidebook (NDSS)

•    Dementia Care Themes (CARF)

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•    CARF Connection: Improving Service Quality and Supports

•    Keeping Talking About Dementia [Down Syndrome Scotland]

Videos of Interest

Several of the NTG's principals were involved with the production educational videos (running about 20 minutes each) on aging and developmental disabilities and aging and dementia, as well as conference lectures, which have been posted on YouTube.  They can be accessed via the links below:

Dementia and People With Intellectual Disabilitieshttp://youtu.be/wrKLURsAy6Y

When People With Developmental Disabilities Agehttp://youtu.be/MEtkmI2xEG8th

Down Syndrome and Dementia (Oak Grove Center) [5 min]: http://youtu.be/Clbg_j2o7tk

A Caregiver's Guide to Alzheimer's Disease  (NTG - Mary Hogan, MAT]:   https://www.youtube.com/watch?v=QVA02p-Jhj0

     National Task Group on Intellectual Disabilities and Dementia Practices. © 2020                           www.the-ntg.org                                                       Edited 8/12/20

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