About the NTG

The ‘NTG’ is a not-for-profit organization charged with ensuring that the interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and other causes of dementia – as well as their families and friends – are taken into account as part of the National Plan to Address Alzheimer’s Disease.

The NTG's overall mission is to advocate for services and supports for people with intellectual disability and their families who are affected by Alzheimer's disease and dementias.

We produce materials related to dementia, including practice guidelines, screening tools, education and training curricula and workshops, agency and family-based information, and other technical materials – as well provide technical assistance.

The NTG is a non-for-profit organization which collaborates with  various national associations, organizations, and university centers. The NTG maintains an affiliation with the American Academy of Developmental Medicine and Dentistry (AADMD).  Read more about us.

The NTG is a member of LEAD - 'Leaders Engaged on Alzheimer's Disease' (a Washington-based coalition working to focus attention on Alzheimer’s disease and related disorders) and NIH's Down Syndrome Consortium (which includes DS-Connect®). The NTG is also a member of FoNIA - the Friends of the National Institute on Aging.

The NTG also has membership on the NAPA Federal Advisory Council on Alzheimer's Research, Care, and Services.

The chairs of the NTG are Matthew P. Janicki, Ph.D. and Seth M. Keller, MD.

'With compassion for people with intellectual disability and dementia, the NTG is committed to raise global awareness and increase support system capacity through advocacy, research, training, and education.'

Download the NTG Brochure

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El Grupo de Trabajo Nacional sobre Prácticas de Discapacidad Intelectual y Demencia (NTG)

La misión del NTG’s es defender los servicios y apoyos para las personas con discapacidad intelectual y sus familias afectadas por la enfermedad de Alzheimer y la demencia

“I can think of no other disease that has such a profound effect on loss of function, loss of independence, and the need for care. I can think of no other disease so deeply dreaded by anyone who wants to age gracefully and with dignity. I can think of no other disease that places such a heavy burden on families, communities, and societies. I can think of no other disease where innovation, including breakthrough discoveries to develop a cure, is so badly needed.” 

 Dr. Margaret Chan,


 World Health Organization

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