Caring for a loved one who has Down syndrome and Alzheimer's or another dementia
can be one of the greatest challenges we face.
We do not have to do it alone!
Advocating for the Needs of Families
Family Advocacy Workgroup
The NTG is committed to family caregivers, as well as direct service professionals, who support individuals with intellectual disability and dementia. We recognize that many family members provide direct, day-to-day care to their loved one, while others are involved indirectly. No matter how you provide care, the work we do is in support of all family caregivers.
The Family Advocacy Workgroup:
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Provides written and in-person public comments to the National Alzheimer’s Project Act Advisory Council and the RAISE Family Caregiver Advisory Council
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Facilitates the first monthly national online support group for family caregivers
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Assists individuals and organizations to develop local in-person and online support groups
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Disseminates a quarterly Family Caregiver Newsletter worldwide
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Provides technical assistance to recipients of federal grants and research projects
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Co-authors publications related to intellectual disability and dementia
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Participates in a Facebook group for caregivers and professionals supporting individuals with Down syndrome and Alzheimer’s disease
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Collaborates with NDSS on its Adult Summits and areas of common interest
Co-chairs of the Family Advocacy Workgroup are Mary Hogan and Jadene Ransdell.