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Family Caregiver Resources

The NTG has compiled key news articles and a list of publications that may be helpful to family members and caregivers caring for adults with an intellectual disability living with dementia.

Family & Caregiver Related News

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Family Helpful Materials

The NTG has produced a number of guides and publications regarding family and caregiver support. These and materials published by others are included in this listing.  Browse through the family support publications library below. To read the document, click on 'Open Publication'

Intellectual Disability and Dementia: A Caregiver's Resource Guide for Nebraskans
Intellectual Disability and Dementia: A Caregiver's Resource Guide for Nebraskans

Caregiver resource guide

What do I Really Need? Assessment of Caregiver Support for People with IDD and Dementia
What do I Really Need? Assessment of Caregiver Support for People with IDD and Dementia

Conference poster

Guidance on Use of Antipsychotics with Adults with ID and Dementia
Guidance on Use of Antipsychotics with Adults with ID and Dementia

Resource document

Things to Know About Health (RI Caregiver Guide Supplement)
Things to Know About Health (RI Caregiver Guide Supplement)

Caregiver resource guide

Talking About Dementia: A Guide for Families, Caregivers and Adults with Intellectual Disability (RI Caregiver Guide Supplement)
Talking About Dementia: A Guide for Families, Caregivers and Adults with Intellectual Disability (RI Caregiver Guide Supplement)

Caregiver resource guide

Intellectual Disability and Dementia: A Caregiver’s Resource Guide for Rhode Islanders
Intellectual Disability and Dementia: A Caregiver’s Resource Guide for Rhode Islanders

Caregiver resource guide

Booklet on Alzheimer's Disease and Down Syndrome
Booklet on Alzheimer's Disease and Down Syndrome

Caregiver resource guide

Aging and Down Syndrome: A Health & Wellbeing Guidebook
Aging and Down Syndrome: A Health & Wellbeing Guidebook

Caregiver resource guide

Guidelines for Dementia-related Health Advocacy for Adults with ID and Dementia
Guidelines for Dementia-related Health Advocacy for Adults with ID and Dementia

Resource document

A Guidance Document on Dementia in Persons with Intellectual Disability
A Guidance Document on Dementia in Persons with Intellectual Disability

Resource document

Physician's Quick Guide for Using the NTG-EDSD
Physician's Quick Guide for Using the NTG-EDSD

Resource document

FAQ on Dementia and ID
FAQ on Dementia and ID

Resource document

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Family & Caregiver Related Publications

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