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Family Caregiver Resources

The NTG has compiled key news articles and a list of publications that may be helpful to family members and caregivers caring for adults with an intellectual disability living with dementia.

Family & Caregiver Related News

Upcoming Events

5/19/25 7:00pm EDT

Free Webinar for Family Caregivers - Open Flyer for Registration Link!

GUIDE - A new program that can offer support to families caring for an adult with an intellectual disability and dementia.

Family & Caregiver Related Publications

The NTG has produced a number of guides and publications regarding family and caregiver support. These and materials published by others are included in this listing.  Browse through the family support publications library below. To read the document, click on 'Open Publication'

Aging and Down Syndrome: A Health & Wellbeing Guidebook
Aging and Down Syndrome: A Health & Wellbeing Guidebook

Caregiver resource guide

Booklet on Alzheimer's Disease and Down Syndrome
Booklet on Alzheimer's Disease and Down Syndrome

Caregiver resource guide

Down Syndrome and Dementia: A Guide for Families
Down Syndrome and Dementia: A Guide for Families

Caregiver resource guide

End-of-life and Down syndrome: A companion guidebook to aging and down syndrome: A health and well-being guidebook
End-of-life and Down syndrome: A companion guidebook to aging and down syndrome: A health and well-being guidebook

Resource guide

FAQ on Dementia and ID
FAQ on Dementia and ID

Resource document

Future Planning Guidebook for Older Caregivers of Adults with Intellectual and Developmental Disabilities
Future Planning Guidebook for Older Caregivers of Adults with Intellectual and Developmental Disabilities

Resource Booklet

Guidance on Use of Antipsychotics with Adults with ID and Dementia
Guidance on Use of Antipsychotics with Adults with ID and Dementia

Resource document

Guidelines for Dementia-related Health Advocacy for Adults with ID and Dementia
Guidelines for Dementia-related Health Advocacy for Adults with ID and Dementia

Resource document

Intellectual Disability and Dementia: A Caregiver's Resource Guide for Nebraskans
Intellectual Disability and Dementia: A Caregiver's Resource Guide for Nebraskans

Caregiver resource guide

Intellectual Disability and Dementia: A Caregiver’s Resource Guide for Rhode Islanders
Intellectual Disability and Dementia: A Caregiver’s Resource Guide for Rhode Islanders

Caregiver resource guide

Keep Talking About Dementia
Keep Talking About Dementia

Caregiver resource guide

Living with Dementia - Down Syndrome Scotland
Living with Dementia - Down Syndrome Scotland

Resource document

Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges (2nd Ed.)
Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges (2nd Ed.)

Book

My Thinker's Not Working
My Thinker's Not Working

Resource document

Physician's Quick Guide for Using the NTG-EDSD
Physician's Quick Guide for Using the NTG-EDSD

Resource document

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