NTG Publications

Frequently Asked Questions (FAQ).  A series of questions and answers related to intellectual disability and dementia. This publication offers an introduction to intellectual disability and dementia.

 

My Thinker's Not Working.  42-page summative report is a national strategy for enabling adults with ID affected by Dementia to remain in their community and receive quality supports.

Guidelines For Evaluation and Management of Dementia in Adults With ID.  A framework for the practicing physician who seeks to approach the clinical question of diagnosing a person with ID practically, thoughtfully, and comprehensively.  

Guidelines for Structuring Community Care and Supports for People with ID Affected by Dementia. These guidelines were developed to assist families and organizations in their planning for extended care that accompanies the diagnosis of dementia, 

Guidelines for Dementia-Related Health Advocacy for Adults with ID and Dementia. Caregivers need to recognize and communicate symptoms, as well as find appropriate practitioners familiar with the medical issues presented by aging adults with lifelong disabilities. Noting changes in behavior and function and raising suspicions with a healthcare practitioner, during routine or ad hoc visits, can help focus the examination and potentially validate that the decline is the result of the onset or progression of dementia.  It can also help in ruling out reversible conditions that may have similar presentation of symptoms typical for Alzheimer’s disease and related dementias. 

Examining Adults with Neuroatypical Conditions for MCI/Dementia During Cognitive Impairment Assessments: Report of the Neuroatypical Conditions Expert Consultative Panel. This report was developed jointly by the NTG and LuMind IDSC Foundation along with a specially composed Neuroatypical Conditions Expert Consultative Panel with the aim to examine the barriers and special considerations to consider when adults with common neuroatypical (e.g., brain injury, intellectual disability, severe mental illness) and neurodivergent (e.g., autism spectrum disorders, cerebral palsy, sensory impairments) conditions are examined as part of the Annual Wellness Visit or other periodic assessments undertaken to determine whether the adults have a cognitive impairment potentially liked to a mild cognitive impairment (MCI) or dementia.