The NTG-EDSD was developed in response to requests by family caregivers and agencies for a tool useful to record observations of changes in function. The specialized information provided by the NTG-EDSD can aid community practitioners when examining and assessing adults with intellectual disability. The NTG-EDSD is designed to be completed by family caregivers and staff at local agencies and organizations.   

NTG Publications

Frequently Asked Questions (FAQ).  A series of questions and answers related to intellectual disability and dementia. This publication offers an introduction to intellectual disability and dementia.

 

My Thinker's Not Working.  42-page summative report is a national strategy for enabling adults with ID affected by Dementia to remain in their community and receive quality supports.

Guidelines For Evaluation and Management of Dementia in Adults With ID.  A framework for the practicing physician who seeks to approach the clinical question of diagnosing a person with ID practically, thoughtfully, and comprehensively.  

Guidelines for Structuring Community Care and Supports for People with ID Affected by Dementia. These guidelines were developed to assist families and organizations in their planning for extended care that accompanies the diagnosis of dementia, 

Guidelines for Dementia-Related Health Advocacy for Adults with ID and Dementia. Caregivers need to recognize and communicate symptoms, as well as find appropriate practitioners familiar with the medical issues presented by aging adults with lifelong disabilities. Noting changes in behavior and function and raising suspicions with a healthcare practitioner, during routine or ad hoc visits, can help focus the examination and potentially validate that the decline is the result of the onset or progression of dementia.  It can also help in ruling out reversible conditions that may have similar presentation of symptoms typical for Alzheimer’s disease and related dementias.