Key Past Events
Here you will find key past events and the materials produced from them.
Conference Involvement by NTG Board Members
Board Secretary Kathryn P. Service presented a poster titled "Adults with Intellectual Disabilities and Other Neurodiverse Conditions: Considerations for Dementia Assessment and Management " (abstract #131) at the upcoming annual conference of the Gerontological Advanced Practice Nurses Association (GAPNA) Annual Conference, September 12-14, 2024, in San Antonio, Texas.
2024 NTG Annual Conference
June 6-9, 2024, Chicago, Illinois
The NTG contributed a partial day program to the annual AADMD conference that was held in Chicago, Illinois on June 6-9, 2024. The 'NTG Day' was on Friday, June 7th, and the NTG's contribution was an exciting and highly informative program for the morning.
Speakers included Dr. Beth Marks of the University of Illinois Chicago, who gave a keynote address on brain health and developmental disabilities. A special plenary panel on 'Emerging Older-Age Clinical Issues in Down Syndrome and Intellectual Disabilities' followed and included presentations by Dr. Richard Fisher, Lumind IDSC Foundation ('What we need to know about the emergence of Alzheimer’s disease modifying treatments'), Dr. Brian Chicoine, Advocate Medical Group Adult Down Syndrome Center ('What is new on diagnosis and care in primary practice for adults with Down syndrome'), and Ms. Anna Fedewa, NDSS ('What is the perspective on what matters for families and people with Down syndrome'). The Moderator was Dr. Seth M. Keller, co-President, NTG.
NTG principals were alsoinvolved in the afternoon breakout sessions. Dr. Seth Keller offered a session on neurological aspects of adults with neuroatypical conditions, and Kathryn Service and Matthew Janicki participated in a session on the new KAER Companion on Intellectual Disability.
Dr. Teresa Moro and Kathryn Pears covered the NTG's exhibit and materials distribution at the Conference.
Click on flyer
NTG Board Members Presented at 36th Global Conference of Alzheimer’s Disease International in Krakow, Poland (April 2024)
NTG Board member Kathryn Service presented on topics related to intellectual disability and dementia at the April 2024 ADI Conference in Krakow, Poland. Ms. Service's presentation, 'A Support Group for Families with a Member with an Intellectual Disability Who is Living with Dementia: A Case Study and a Story' covered her experience with the NTG's family support group program. [Click on image for poster]
Dr. Matthew Janicki's presentation, 'Adapting Alzheimer's Disease Modifying Treatment Criteria to Accommodate Adults with Down Syndrome,' delivered by Ms. Service, addressed the work that the NTG and the Lumind IDSC Foundation have been doing with advocating for equity in access to the newly approved anti-amyloid medications for treating Alzheimer's disease. Dr. Janicki's co-authors were Hampus Hillerstrom and Dr. Richard Fisher of Lumind IDSC. [click on image]
The Changing Landscape of Care for Adults with Down Syndrome at Risk for Alzheimer's Disease: Preparing for Improvements in Diagnostic Assessments, Biomarkers and Medical Therapeutics
The aim of this meeting, held on April 25, 2023, was to bring together attendees at the American Academy of Neurology conference, leaders in the discipline of Alzheimer's disease, aging, and intellectual disabilities, representatives of several pharmas, and key stakeholders from the greater Boston metropolitan area, to address collectively a number of key issues via open discussion.
Discussed were a number of issues and concerns related to assessment of cognitive decline in adults with neuroatypical conditions as well as a review of the implications of the usage of biomarkers and new emerging Alzheimer's therapeutics. A statement and summary of the meeting is forthcoming.
This meeting was an 'in conjunction with' event held at the 2023 annual meeting of the American Academy of Neurology in Boston, Massachusetts. The site was the Element Boston Seaport District Hotel in Boston.
FMI: contact Dr. Seth Keller, the meeting's convenor.
To access copy of prospectus and agenda
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Alzheimer Europe Conference Presentation on Down Syndrome and DMTs
Board member, Dr. Matthew Janicki, spoke at a session on 'Inclusion Strategies for Adults with Down Syndrome and Access To New Anti-amyloid DMTs' at the 34th Alzheimer’s Europe Conference in Genève, Switzerland on 8 Oct 2024
To see presentation click on the image to the right
II Summit on Intellectual Disability and Dementia
Tuesday & Wednesday, October 24/25, 2023, Toronto, Ontario Canada
This event was a collaborative effort undertaken by the Canadian NTG Consortium, the NTG (USA), the REENA Organization of Thornhill, Ontario, and others. The Summit, in a round-table format, was held over two days during which attendees will be examining three significant issues - human rights and intellectual disability, co-incident neuroatypical conditions, and brain health and wellness practices. The Summit was limited in attendance, but interested researchers, clinicians, agency personnel, and others were welcome to self-nominate for participation and invitation. The Toronto Summit, modeled on the first one held in Glasgow, Scotland in 2016, has agreed to produce a summative statement and participants will contribute to a series of reports and peer-reviewed articles which will emanate from the Summit.
The venue for the Summit was Toronto, Ontario, Canada. Dementia screening instruments are relatively quick and easy to administer, making them suitable for use in a variety of healthcare settings. Participant travel was self-funded, and the local organizer, the Reena Organization, subsidized lodging and contributed to local amenities. The meeting site was the Holiday Inn Pearson International Airport, 970 Dixon Road, Toronto, Ontario M3W 1J9. Transcripts of the discussions for both days are found below (click on the Transcript Day 1 or Day 2 button for the PDF.
Persons interested in information on the status of outputs being produced by Summit participants can check the International Summit Secretariat website For more details on the II Summit, the flyer for it is available below.
Summit Partners
