Welcome to The NTG
The NTG is a not-for-profit organization charged with ensuring that the interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and other causes of dementia - as well as their families and friends – are taken into account.
Our mission is to advocate for services and supports for people with intellectual disability who are affected by Alzheimer’s disease and dementias and for their families.
NTG Appoints Kathryn Pears as Director of Operations
The NTG is pleased to announce that Kathryn Pears has joined the NTG staff as its Director of Operations. Ms. Pears comes to the NTG with more that 30 years experience in administrative and education roles. Ms. Pears will be responsible for managing many of the NTG's myriad activities and serve as its representative to many of our collegial organizations.
NTG Seeking Nominations for Two Openings on its Board
NOTE - SUBMISSION DEAD LINE- May 25, 2023
The National Task Group on Intellectual Disabilities and Dementia Practices is inviting nominations / applications for two vacancies on its Board of Directors. The positions will be filled immediately or as soon as the appropriate candidates are elected. We have received requests for an extension of time to submit, thus nominations or applications are now open until May 25, 2023. Self-nominations are welcome. Please share the following announcement with your friends, colleagues, and network and in your social media.
NTG and LuMind IDSC Issue Advisory on Prescribing Criteria for Alzheimer's Therapeutics
The NTG, the LuMind IDSC Foundation, and an international blue ribbon expert panel produced an advisory on adapting drug formulary committed criteria by States so that adults with Down syndrome (and other intellectual disabilities) can be prescribed FDA approved Alzheimer's disease anti-amyloid immunotherapeutics, once they are authorized for use by adults with Down syndrome.
NTG Issues Advisory on Settings Rule and
The NTG has issued a public policy advisory on applications of the CMS 'Settings Rule; with applications to community -based housing for adults with intellectual disability living with dementia. The advisory covers that adaptations agencies could use to provide HCBS supports in small dementia capable group homes and designing person-centered care plans.
NTG Issues Advisory on Over-medication
The NTG, jointly with the Health Matters Program at the University of Illinois Chicago, has issued an advisory on risk reduction and brain health by moderating over-medication among adults with intellectual disability. The advisory, designed to promote healthy brain outcomes, recognizes that over-medicating can have negative effects on physical and brain health, as well as potentially can increase the risk for mild cognitive impairment or dementia. The information provided is intended to lead to a constructive scrutiny of medication use, avoid “medication harm’, and result in positive health outcomes.
Project ECHO series on Dementia and Intellectual Disability
NTG and URI/VCU is now holding its Spring 2023 ECHO Series -- 'Growing Older with Lifelong Intellectual Disabilities: When Dementia is Suspected or Diagnosed'. This ECHO series is a free, practical, case-based education program for health care and social service providers who want to enhance their knowledge, capabilities, and performance related to the care of people with intellectual and developmental disabilities affected by dementia. There is still time to register and participate in the remaining sessions!
ID & Dementia Project in Texas!
The NTG is partnering with the University of Texas Health Science Center at Houston to undertake a five-year project funded by the Texas Council on Developmental Disabilities to expand awareness and services for adults with intellectual disability living with dementia. See the project website for current and pending events and activities.
Upcoming Trainings and Workshops
NTG Training & Education
The NTG offers training workshops on intellectual disability and dementia, in the US and Canada. These renowned workshops are based on the NTG's evidence-informed curriculum modules on various topics related to intellectual disability and dementia.
NTG's ECHO education series is a free, practical, case-based education program for health care and social service providers who want to enhance their knowledge, capabilities, and performance related to the care of people with intellectual and developmental disabilities affected by dementia.