Welcome to The NTG
The NTG is a not-for-profit organization charged with ensuring that the interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and other causes of dementia - as well as their families and friends – are taken into account.
Our mission is to advocate for services and supports for people with intellectual disability who are affected by Alzheimer’s disease and dementias and for their families.
Confrères
NTG News
NTG Appoints Kathryn Pears as Director of Operations
The NTG is pleased to announce that Kathryn Pears has joined the NTG staff as its Director of Operations. Ms. Pears comes to the NTG with more that 30 years experience in administrative and education roles. Ms. Pears will be responsible for managing many of the NTG's myriad activities and serve as its representative to many of our collegial organizations.
NTG Joins LuMind IDSC to Define Criteria for Therapeutics
The NTG and the LuMind IDSC Foundation have organized an international blue ribbon expert panel to help define the criteria that States can use to define eligibility for obtaining the new FDA approved Alzheimer's therapeutics, once they are authorized for use by adults with Down syndrome. Such access will be contingent on the successful outcome of safety studies.
NTG Issues Advisory on Over-medication
The NTG, jointly with the Health Matters Program at the University of Illinois Chicago, has issued an advisory on risk reduction and brain health by moderating over-medication among adults with intellectual disability. The advisory, designed to promote healthy brain outcomes, recognizes that over-medicating can have negative effects on physical and brain health, as well as potentially can increase the risk for mild cognitive impairment or dementia. The information provided is intended to lead to a constructive scrutiny of medication use, avoid “medication harm’, and result in positive health outcomes.
Project ECHO series on Dementia and Intellectual Disability
NTG and URI/VCU Opens its Spring 2023 ECHO Series -- 'Growing Older with Lifelong Intellectual Disabilities: When Dementia is Suspected or Diagnosed'. This ECHO series is a free, practical, case-based education program for health care and social service providers who want to enhance their knowledge, capabilities, and performance related to the care of people with intellectual and developmental disabilities affected by dementia.
Epilepsy Webinars Continue
The webinar series, 'Epilepsy in Adults with Intellectual Disabilities', run by the American Academy of Developmental Medicine and Dentistry and the Neurology Consortium of Intellectual and Developmental Disability Practitioners, along with the NTG, examines the intricacies of seizure disorders in adults with intellectual disabilities.
ID & Dementia Project in Texas!
The NTG is partnering with the University of Texas Health Science Center at Houston to undertake a five-year project funded by the Texas Council on Developmental Disabilities to expand awareness and services for adults with intellectual disability living with dementia.
Upcoming Trainings and Workshops
NTG Training & Education
The NTG offers training workshops on intellectual disability and dementia, in the US and Canada. These renowned workshops are based on the NTG's evidence-informed curriculum modules on various topics related to intellectual disability and dementia.
NTG's ECHO education series is a free, practical, case-based education program for health care and social service providers who want to enhance their knowledge, capabilities, and performance related to the care of people with intellectual and developmental disabilities affected by dementia.
NTG Family Support
The NTG is committed to family caregivers, as well as direct service professionals, who support individuals with intellectual disability and dementia. We recognize that many family members provide direct, day-to-day care to their loved one, while others are involved indirectly. No matter how you provide care, the work we do is in support of all family caregivers.
The NTG offers a free monthly online support group for family members caring for an adult relative with ID and dementia. The support group meets the first Thursday of the month at 8 pm Eastern Time.
NTG Training & Education
Publications Library
Looking for information on dementia and various conditions, such as autism or cerebral palsy? What about regression syndrome and Down syndrome?
We maintain information pages, offering summaries of recent research, covering these and other related topics. Go to our full library to filter into categories that interest you.
Featured Publications
click on image to open PDF
My Thinker's Not Working
Resource document
Physician's Quick Guide for Using the NTG-EDSD
Resource document
Examining Adults with Neuroatypical Conditions for MCI/Dementia During Cognitive Impairment Assessments: Report of the Neuroatypical Conditions Expert Consultative Panel
Resource document
FAQ on Dementia and ID
Resource document
Community Care and Supports for People with Intellectual Disabilities Affected by Dementia
Resource document
Bibliography on Dementia Care Management and Intellectual Disability
Working bibliography
Get Involved with the NTG
Stay Informed.
Subscribe for E-News Blasts
Sign up for periodic NTG E-News Blasts! You'll also have access to the very latest information, educational opportunities, and be able to make your voice heard with opportunities to tell policymakers what you think. The best way to stay up-to-date on all things ID and dementia!
Join the NTG.
Become a Member
NTG members receive exclusive benefits, including:
-
discounted registration for workshops & webinars
-
networking opportunities
-
free informational services
-
leadership opportunities
-
corporate travel discounts
-
access to HELEN journal
Individual and Organizational Memberships Available!