UIC COVID-19 Grant Project and ACCSES COVID-19 Survey

NTG collaborating with UIC on COVID-10 Grant Project!

Many people with intellectual disability have health conditions that put them at higher risk, especially those adults living in or attending high-risk congregate care settings, where COVID-19 tends to rapidly spread.  To address this, Drs. Jasmina Sisirak and Beth Marks with the HealthMatters Program at the University of Illinois at Chicago were awarded a grant from the UIC’s Center for Clinical and Translational Science COVID-19 Pilot Grant Program. Their project "Virtual Coach: HealthMatters Google Classroom to Support Frontline Staff to Protect People with ID During and After the COVID-19 Pandemic“ is funded for one year. This project aims to collect information and produce a training program with respect to today's COVID-19 pandemic.

The Project will involve undertaking a national survey in late summer to learn more about how community-based organizations that provide services to people with intellectual disability are preparing and responding to COVID-19 pandemic.  The results with be collated with other information from public input and discussion with national organizations to produce technical materials useful for the provider sector.  Information from other surveys will also be integrated into the Project’s work. 

The Project will also create a Virtual Coach: HealthMatters Google Classroom to determine if this online, any-time, anywhere health promotion training program can effectively get frontline staff and people with intellectual disability to follow public health guidelines and stay safe and healthy. The Virtual Coach HealthMatters Classroom will use lessons from the HealthMatters Program's Administration on Community Living approved, evidence-based HealthMattersTM Program and Health Matters Curriculum for people with intellectual disability and their frontline supports to understand, consider, and communicate health behaviors during and after the pandemic. The HealthMatters Program maintains the Virtual Coach Classroom (open-sourced) at www.HealthMattersProgram.orgFor more information on the Project.


The NTG has agreed to be a collaborating partner in the Project and to aid with the survey and training development aspects.  Other partners include ACCSES and the YAI organization.

ACCSES, YAI, NTG Collaborative Survey    

The ACCSES organization in Washington, DC, is undertaking a major national survey of provider organizations during June 2020 to determine what major challenges agencies are facing with re-entry and protecting their clientele from contagion and re-infections stemming from the COVID-19 pandemic.  The NTG is cooperating with both ACCSES and the YAI organization (in New York City), the survey partners, in managing the survey and with analyzing the results. The information will be used to create policy and legislative recommendations to help with the problems encountered and to enable agencies to put into practice activities to protect their clientele.  The UIC Grant Project is also involved with this national survey.

To access the survey please click here.  The survey is now closed and the results are being tabulated. Information on the survey's outcomes will be posted in mid-August 2020.  

CDC Component B Grant Project

The Centers for Disease Control and Prevention recently announced the award of major grant to the University of Illinois at Chicago for its 'Healthy Brain Initiative for People with Intellectual and Developmental Disabilities' project.  The Centers for Disease Control and Prevention (CDC) (CDC-RFA-DP20-2003) National Healthy Brain Initiative’s Component B recipients are to support populations with a high burden of Alzheimer’s disease and related dementias (ADRD) and to develop and implement public health strategies guided by the Healthy Brain Initiative Road Map Series.  As one of three national awards, the UIC Component B recipient, will begin its 5-year project on September 30, 2020.  Its aim is to support people with intellectual disability and their caregivers by developing and implementing public health strategies to improve the quality of their lives. The project will also work to raise awareness of Alzheimer's disease and related dementias (ADRDs) among people with intellectual disability as a public health issue and support the needs of their caregivers.  The NTG is a partner on the grant and will collaborate in developing many of the materials which will be used as resources as well as bring into the project technical assistance on coping with COVID-19.

     National Task Group on Intellectual Disabilities and Dementia Practices. © 2020                           www.the-ntg.org                                                       Edited 8/12/20

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