Bienvenue au NTG
Le NTG est une organisation à but non lucratif chargée de veiller à ce que les intérêts des adultes ayant une déficience intellectuelle et développementale qui sont touchés par la maladie d'Alzheimer et d'autres causes de démence - ainsi que leurs familles et amis - soient pris en compte.
Notre mission est de plaider en faveur de services et de soutiens pour les personnes ayant une déficience intellectuelle et leurs familles qui sont touchées par la maladie d'Alzheimer et les démences.
Collaborations NTG
NTG-EDSD
Webinar Series for Families... on Aging, Dementia, & ID
NTG Family
Webinar Series
Session 1: The Aging Process
Session 2: Early Screening for Cognitive Changes
Session 3: Life Planning for Phases of the Life Journey
Session 4: Behavioral Changes Occurring with Dementia
Session 5: Family Panel - Sharing Personal Experiences
The NTG's Family Support Program provides a twice yearly informative webinar series on dementia and intellectual disabilities. The series provides key information for families, people with intellectual disability, and others within their support networks concerned about aging/dementia.
The webinars are offered at no cost.
Information about our Fall series will be posted by mid-Summer.
NTG and LuMind IDSC Issue Advisory on Prescribing Criteria for Alzheimer's Therapeutics and Publish Report in Journal
The NTG, the LuMind IDSC Foundation, and an international blue ribbon expert panel produced an advisory on adapting drug formulary committed criteria by States so that adults with Down syndrome (and other intellectual disabilities) can be prescribed FDA approved Alzheimer's disease anti-amyloid immunotherapeutics, once they are authorized for use by adults with Down syndrome. A synopsis of the Panel's report has now been published in Alzheimer's & Dementia, the journal of the Alzheimer's Association.
Project ECHO Series on Dementia and Intellectual Disability
NTG and URI/VCU is now presenting their 2024 ECHO Series, which began on April 22nd. This annual ECHO series is offered twice a year, is free, and is a practical, case-based /education program for health care and social service providers who want to enhance their knowledge, capabilities, and performance related to the care of people with intellectual and developmental disabilities affected by dementia.
The ECHO partners have also issued a look-back at the past four years of their program. Information on the look-back and the '24 Spring series can be found on the ECHO page. Registration for the remaining session is still open.
The Gerontological Society of America and the NTG have Created a 'Companion' on Intellectual Disability and Dementia to its KAER Toolkit
The NTG, provider organizations in Ohio, and the GSA collaborated on producing a Companion to the GSA's renown KAER Toolkit. The new Companion, previewed at the GSA's November Conference in Tampa FL, specifically focuses on issues relevant to intellectual disability and dementia, providing guidance for health workers, support personnel, and caregivers. The companion will be accompanied by various media products making the information more available to a broader audience. The Companion is now available. To access the KAER Companion on Intellectual Disability and Dementia, click on More Info >
NTG Submits Recommendations to NIA/AA on New Alzheimer's Disease Clinical Guidelines
The National Institute on Aging and the Alzheimer’s Association (NIA-AA) draft diagnostic guideline on diagnosing Alzheimer’s disease was issued at the 2023 AAIC Conference in Amsterdam, NL, with a request for comments. The NTG submitted comments that lauded the work of the NIA/AA and proposed that the guideline offer more attention to diagnosing Alzheimer's disease in adults with intellectual disabilities and furthering research on biomarkers in adults with other than Down syndrome. To see an Explainer. A subsequent, revised, version was issued by the Alzheimer's Association at the Clinical Trials on Alzheimer's Disease (CTAD) conference on Oct. 25, 2023, with a call for further comments. The LuMind IDSC Foundation and the NTG submitted a joint comment. To see Nov. 16th submission.
NTG cherche de nouveaux membres au conseil d'administration
The NTG has issued a public policy advisory on applications of the CMS 'Settings Rule; with applications to community-based housing for adults with intellectual disability living with dementia. The advisory covers that adaptations agencies could use to provide HCBS supports in small dementia capable group homes and designing person-centered care plans.
NTG cherche de nouveaux membres au conseil d'administration
The NTG, jointly with the Health Matters Program at the University of Illinois Chicago, issued an advisory on risk reduction and brain health by moderating over-medication among adults with intellectual disability. The advisory, designed to promote healthy brain outcomes, recognizes that over-medicating can have negative effects on physical and brain health, as well as potentially can increase the risk for mild cognitive impairment or dementia. The information provided is intended to lead to a constructive scrutiny of medication use, avoid “medication harm’, and result in positive health outcomes.
NTG Welcomes the Support of the Peter J. Taylor Charitable Trust
The NTG is pleased to recognize the generous support of the Peter J. Taylor Charitable Trust in support of its family assistance and information efforts. New initiatives are underway to expand our focus on supporting families, which include maintaining an on-line monthly support group for caregivers, a new series of informative webinars, and increased involvement in producing family-friendly materials.
NTG cherche de nouveaux membres au conseil d'administration
Le NTG recherche des candidatures pour deux postes au sein de son conseil d'administration. Les membres du conseil assurent la gouvernance globale et apportent leur expertise à l'organisation. Les auto-nominations sont les bienvenues. Si vous avez de l'expérience et/ou de l'intérêt pour la déficience intellectuelle et la démence et que vous croyez en la mission du NTG, veuillez envisager de soumettre une candidature. Rendez-vous sur notre page Candidatures,où plus d'informations sont disponibles. Les candidatures doivent être soumises avant le 20 septembre 2022.
International Summit on ID and Dementia and the NTG Issue Seminal Report on Autism and Dementia
The NTG was a partner in the recently held 2nd International Summit on Intellectual Disabilities and Dementia, held on October 24-25, 2023 in Toronto, Ontario Canada. The Summit was part of the 50th Anniversary Celebration of the Reena Organization. A report on autism and dementia has been issue by the Summit Secretariat; other reports will be are forthcoming. The Summit report on autism and dementia is now available. The NTG is hosting the international ID and dementia Summit Secretariat.
Dr. Kathleen Bishop, NTG's Vice President, Offers Public Comments to Federal NAPA Advisory Council
The NTG's Vice President, Dr. Kathleen Bishop, offered comments to the federal Advisory Council on Alzheimer's Research, Care, and Services on the NTG's collaborative effort with the National Association for Direct Support Professionals of our collective model for acknowledging educational capabilities on dementia and intellectual disability via the NADSP's e-Badge Academy. She spoke to the need for increasing educational and training opportunities for direct support personnel who are working in settings serving adults with intellectual disability affected by dementia.
NTG Board Member, Prof. Christina Marsack-Topolewski Recognized for Advocacy Efforts in Michigan
The Arc of Oakland County Michigan awarded Eastern Michigan University professor, Dr. Christina Marsack-Topolewski, a NTG Board member, the Advocacy Hall of Fame Award. Dr. Marsack-Topolewski was recognized for five years of community service work supporting a new state law to protect vulnerable adults with disabilities against online predation.
Formations et ateliers à venir
Formation et éducation NTG
Le NTG offre des ateliers de formation sur la déficience intellectuelle et la démence, aux États-Unis et au Canada. Ces ateliers renommés sont basés sur les modules du programme d'études fondés sur des données probantes du NTG sur divers sujets liés à la déficience intellectuelle et à la démence.
La série d'éducation ECHO de NTG est un programme d'éducation gratuit, pratique et basé sur des cas pour les fournisseurs de soins de santé et de services sociaux qui souhaitent améliorer leurs connaissances, leurs capacités et leurs performances liées aux soins des personnes atteintes de déficiences intellectuelles et développementales touchées par la démence.
Soutien à la famille NTG
Le NTG s'engage auprès des aidants familiaux, ainsi que des professionnels des services directs, qui soutiennent les personnes atteintes de déficience intellectuelle et de démence. Nous reconnaissons que de nombreux membres de la famille prodiguent des soins quotidiens directs à leur proche, tandis que d'autres y participent indirectement. Peu importe la façon dont vous prodiguez des soins, le travail que nous faisons est de soutenir tous les aidants familiaux.
Le NTG propose un groupe de soutien en ligne mensuel gratuit pour les membres de la famille qui s'occupent d'un parent adulte atteint de DI et de démence. Le groupe de soutien se réunit le premier jeudi du mois à 20 h, heure de l'Est.
Formation et éducation NTG
Bibliothèque des publications
Vous recherchez des informations sur la démence et diverses conditions, telles que l'autisme ou la paralysie cérébrale? Qu'en est-il desyndrome de régressionetSyndrome de Down?
Nous maintenons des pages d'information, proposant des résumés de recherches récentes, couvrant ces sujets et d'autres sujets connexes. Accédez à notre bibliothèque complète pour filtrer les catégories qui vous intéressent.
Publications en vedette
click on image to open PDF
My Thinker's Not Working
Resource document
Physician's Quick Guide for Using the NTG-EDSD
Resource document
Examining Adults with Neuroatypical Conditions for MCI/Dementia During Cognitive Impairment Assessments: Report of the Neuroatypical Conditions Expert Consultative Panel
Resource document
FAQ on Dementia and ID
Resource document
Community Care and Supports for People with Intellectual Disabilities Affected by Dementia
Resource document
Bibliography on Dementia Care Management and Intellectual Disability
Working bibliography
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Devenir membre
Les membres NTG bénéficient d'avantages exclusifs, notamment :
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inscription à prix réduit aux ateliers et webinaires
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opportunités de réseautage
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services d'information gratuits
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opportunités de leadership
Particuliers - cotisation annuelle de 50 $
Étudiant/retraité/membre de la famille - cotisation annuelle de 25 $
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