Grupo Nacional de Trabajo sobre Prácticas en las Discapacidades Intelectuales y la Demencia (NTG) es una organización sin fines de lucro encargada de garantizar que se tengan en cuenta los intereses de los adultos con discapacidades intelectuales y del desarrollo afectados por la enfermedad de Alzheimer y otras causas de demencia, así como los de sus familiares y amigos.
Bienvenidos a NTG
Family Caregivers
Information for family caregivers.
Professionals
Information for health care and service providers.
FEATURED UPCOMING EVENTS
In September we'll be holding our Year 3 'Meet & Greet' to showcase our continuing efforts to aid GUIDE Model Participants bring aboard more beneficiaries with IDD living with dementia. Details will follow!
NTG-EDSD
NTG’s Early Detection Screen for Dementia (NTG-EDSD)
El NTG-EDSD es una herramienta de detección que se utiliza para establecer una línea base en adultos con discapacidad intelectual y del desarrollo (DID) y así rastrear cambios funcionales que podrían indicar la aparición de demencia. El NTG-EDSD está diseñado para ser completado por cuidadores familiares y personal de agencias y organizaciones locales.
Colaboraciones NTG
Purpose of the NTG
Nuestra misión es abogar por los servicios y apoyos para las personas con discapacidad intelectual y sus familias que se ven afectadas por la enfermedad de Alzheimer y las demencias.
Colaboraciones NTG
Professional Training and Workshops
Colaboraciones NTG
Colaboraciones NTG
Featured NTG News and Events
Featured News
NTG Submits Public Comments to HHS Regarding the On-going NAPA National Dementia Plan
The NTG has submitted recommendations for the updated National Plan to Address Alzheimer’s Disease, calling for adults with intellectual disabilities, including Down syndrome, to be explicitly included across the nation’s dementia research, healthcare, services, workforce, and policy strategies. The submission emphasizes that this population remains too often overlooked in mainstream dementia initiatives and calls for intentional inclusion throughout the Plan so that advances in diagnosis, treatment, care, and support are equitably available to people with intellectual disabilities and their families. To Read NTG's Comments
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NTG Statement on Community Living, Dementia, and the Principles of Olmstead v. L.C.
This article, dated June 29, 2026, explains how The National Task Group on Intellectual Disabilities and Dementia Practices (NTG) is deeply concerned that the recent opinion issued by the U.S. Department of Justice regarding the interpretation of the Americans with Disabilities Act and Olmstead v. L.C. may weaken the longstanding expectation that states develop and sustain community-based supports for people with disabilities. Although the opinion does not alter existing law, it raises concerns about how the ADA's integration mandate may be interpreted and implemented in the future and what that could mean for continued progress toward community living, self-determination, and inclusion. Read Article...
NTG Welcomes Dr. Natalia Rozas as Education & Training Coordinator
The National Task Group on Intellectual Disabilities and Dementia Practices (NTG) is pleased to welcome Dr. Natalia Rozas, Ph.D. as our new Education & Training Coordinator. In this role, Dr. Rozas will support the development and coordination of NTG’s national training programs, including webinars, workshops, and online learning opportunities for health professionals, caregivers, and service systems.
Dr. Rozas is a neuroscientist and educator with a passion for improving brain health and dementia care for people with intellectual and developmental disabilities. She specializes in translating complex science into practical, easy-to-use training that helps advance person-centered, dementia-capable care in communities across the country.
We are excited to have Dr. Rozas join the NTG team and look forward to the expertise and energy she brings to expanding NTG’s education and training initiatives.
New CQL Article: The Coming Wave: Aging, Intellectual Disabilities, and Dementia Care
This article, posted on June 24, 2026, was written by our own Katheryn Pears, MPPM, The NTG's Chief Operations Officer. In this CQL Capstone Newsletter article, Ms. Pears explores why early recognition, accurate diagnosis, caregiver education, and dementia-capable community supports are essential, and highlights practical strategies for helping individuals age with dignity while preparing service systems for this growing public health challenge. The Capstone Newsletter is a product of the Council on Quality and Leadership, a nationally recognized nonprofit organization dedicated to improving the quality of life and services for people with intellectual, developmental, and psychiatric disabilities. Read Article...
Special Olympics Inclusive Health Initiative Grant Project & GUIDE
New Online, On-Demand Course Now Available
NTG's Online Course for GUIDE Navigators on Intellectual Disability and Dementia
The NTG, with support from Special Olympics, is offering a free supplemental online course designed specifically for GUIDE Navigators and related CMS GUIDE professionals -- "Navigating Dementia Care in Intellectual Disabilities." The course provides a timely and practical introduction to the unique challenges faced by Medicare beneficiaries with intellectual disability who are aging with dementia. Delivered in three on-demand units, the course covers the fundamentals of aging and dementia in intellectual disability, the dynamics of family and specialized caregiver support, and strategies for leveraging community resources to enhance person-centered care planning. Course registration is now open. For more details...
Fall 2026 Dementia and ID ECHO Series is in the Works!
Our Spring 2026 ID & Dementia ECHO Series has been completed and our Fall 2026 Series in Coming Soon!
The NTG and URI/VCU GWEPs held its12th series of ECHO sessions (Growing Older with Lifelong Intellectual Disabilities: When Dementia is Suspected or Diagnosed) from March 30 through to May 18th.
To view recordings - FMI
The 13th series, "Navigating Dementia Care Conundrums: Practical Solutions for Supporting Adults with IDD, will begin October 10th and run fortnightly through to December 7th. Information on session content and registration will be posted in late August.
Webinar on EDSD - Available for Viewing
Our Special EDSD webinar held on November 17th is now available on YouTube!
Capturing Observations of Change Using the NTG's Early Detection Screen for Dementia (NTG-EDSD)
The webinar addressed how the NTG Early Detection Screen for Dementia (NTG-EDSD) can help you recognize early signs of dementia in adults with intellectual disability or Down Syndrome. To view the recording of the webinar or see the Powerpoints...
More Language Versions of EDSD Now Available!
Additional language versions of the EDSD have been added to the NTG-EDSD webpage
The NTG's Early Detection Screen for Dementia (NTG-EDSD) now updated and in new languages
The EDSD is internationally recognized as a useful tool of picking up on early signs of dementia in adults with intellectual disability and is now available in several new language versions. To access translations...
Canadian Study Underway on the NTG-EDSD
National study exploring uses of NTG-EDSD
Focusing on the NTG-EDSD, the study at the Azrieli Adult Neurodevelopmental Centre in Toronto is examining how the tool is being used across Canada. The project involves case studies and national surveys with the aims to strengthen early detection, improve supports, and inform best practices in dementia care for adults with intellectual and developmental disabilities. Learn more: https://www.azrieli-anc.com/dementiascreeningprogram To read project summary
Biblioteca de publicaciones
Mantenemos una amplia biblioteca de publicaciones e investigaciones relacionadas con el envejecimiento, las discapacidades intelectuales y la demencia. Visite nuestra página de la Biblioteca de Publicaciones para filtrar la información por categorías de su interés.
Publicaciones destacadas
click on image to open PDF
Resource document
My Thinker's Not Working
Resource document
Community Care and Supports for People with Intellectual Disabilities Affected by Dementia
Resource document
Guidelines for Dementia-related Health Advocacy for Adults with ID and Dementia
Resource document
Examining Adults with Neuroatypical Conditions for MCI/Dementia During Cognitive Impairment Assessments: Report of the Neuroatypical Conditions Expert Consultative Panel
Working bibliography
Bibliography on Dementia Care Management and Intellectual Disability
Journal article
Guidelines for Structuring Community Care and Supports for People With Intellectual Disabilities Affected by Dementia
Resource document
The National Task Group on Intellectual Disabilities and Dementia Practices consensus recommendations for the evaluation and management of dementia in adults with intellectual disabilities
Report
Autism, aging, and dementia: A consensus report of the Autism/Dementia Work Group of the 2nd International Summit on Intellectual Disabilities and Dementia
Get Involved
Únete a la NTG.
Hazte miembro
Los miembros de NTG reciben beneficios exclusivos, que incluyen:
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registro con descuento para talleres y seminarios web
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oportunidades de establecer contactos
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servicios informativos gratuitos
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oportunidades de liderazgo
Individuos - Cuota anual de $50
Estudiante/jubilado/miembro de la familia: cuota anual de $25
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Individual and Organizational Memberships Available!