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NTG-EDSD

NTG - Early Detection and Screen for Dementia
(NTG-EDSD)

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What is the NTG-EDSD?

The NTG released the NTG-Early Detection Screen for Dementia (NTG-EDSD) which was developed in response to requests by family caregivers and agencies for a tool useful to record observations of changes in function.

 

The NTG-EDSD is used in starting that critical conversation with (and among) clinical personnel as to whether their observations merit more explicit assessment for MCI or dementia or -- alternatively – signal behaviors that may be amenable to intervention and remediation. 

 

The NTG-EDSD, an administrative screening tool, is useful as part of the information collected in conjunction with the Affordable Care Act’s annual wellness visit and cognitive impairment assessment. The NTG-EDSD has been recognized as a useful dementia symptoms or indicators screening tool in the guidelines issued by the Medical Care Guidelines for Adults with Down Syndrome Workgroup and published in JAMA [2020, 324(15),1543-1556].  It has been found of use in studies of mild cognitive impairment, as well - see Silverman et al., 2021 (JARID, doi: 10.1111/jar.12849)

 

The NTG-EDSD is also useful for collective discussions and dementia care planning involving families and care providers.  A presentation by Dr. Lucy Esralew, of NTG's Board of Directors and Chair of the NTG's Clinical Care Committee, explains its basis and how it can be applied via a set of informative slides.  Click here to access her presentation.

The specialized information provided by the NTG-EDSD can aid community practitioners when examining and assessing adults with intellectual disability. The NTG-EDSD is designed to be completed by family caregivers and staff at local agencies and organizations. 

Physician's Quick Guide for Using the NTG-EDSD

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Download the one-pager PDF by clicking on the image to the left.

Quick Guide for Using the NTG-EDSD by Families

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Download the one-pager PDF by clicking on the image to the left.

Quick Guide for Using the NTG-EDSD by Staff

Staff Guide to EDSD_edited.jpg

Download the one-pager PDF by clicking on the image to the left.

Note: The EDSD has been slightly modified as of May 2024 to eliminate the IQ range scores due a change in the range intervals; the current form only shows the IQ categories.

NTG-EDSD Manual

English Language Version
English Print Version
English Electronic Version
Fillable PDF
Various Language Versions
Dutch
Italian
Greek
German
French
Spanish /
No. American
Spanish /
European
Japanese
Scottish
Finnish
NTG-EDSD Manuals
English Manual
French Manual
Italian Manual
Spanish Manual
Links to NTG-EDSD Webpages

  The Arc
  CAUNJ.org
  HealthMatters Program
  WAI.WISC 
  3DN.USNW.AU
Workshops/Trainings about the NTG-EDSD

A number of organizations have opted to use the NTG-EDSD for administrative screening and enabling staff to construct dementia care plans. They, or their administrative partners, have organized training to build capacity among staff and caregivers to use the NTG-EDSD for screening and care planning. Listed are a few examples of such trainings.

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Wisconsin Alzheimer Institute at the University of Wisconsin

Screening for Dementia in Persons with an Intellectual Developmental Disability

Held January 16, 2019

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Catholic Charities Hawaii

Early Detection of Changes Associated with Cognitive Decline in Adults with Intellectual & Developmental Disabilities

Held March 12, 2020

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Community Access Unlimited (CAUNJ), Elizabeth,New Jersey

National Task Group Early Detection Screen for Dementia (NTG-EDSD)

Presentation by Lucy Esralew, Ph.D.

Held July 2019

   Natl_Task_Force-Early_Detection_Dementia_PPT-1.pdf (caunj.org)

NTG-EDSD Articles and Publications
AAIC 2020 Poster on NTG-EDSD

AAIC 2020 Poster on NTG-EDSD

Conference poster

Cognitive Functioning Differences Between Physically Active and Sedentary Older Adults

Cognitive Functioning Differences Between Physically Active and Sedentary Older Adults

Journal article

Community Care and Supports for People with Intellectual Disabilities Affected by Dementia

Community Care and Supports for People with Intellectual Disabilities Affected by Dementia

Resource document

DEMENZ Article on NTG-EDSD (in German)

DEMENZ Article on NTG-EDSD (in German)

Journal article

Dalton Protocol for Recording Baseline Information

Dalton Protocol for Recording Baseline Information

Instrument guide

Dementia Diagnosis and Healthcare Pathway for People with a Learning Disability

Dementia Diagnosis and Healthcare Pathway for People with a Learning Disability

Guideline document

Dementia and Intellectual Disabilities

Dementia and Intellectual Disabilities

Magazine article

Dementia and People with Intellectual Disabilities: Guidance on the Assessment, Diagnosis, Interventions and Support of People with Intellectual Disabilities Who Develop Dementia

Dementia and People with Intellectual Disabilities: Guidance on the Assessment, Diagnosis, Interventions and Support of People with Intellectual Disabilities Who Develop Dementia

Resource document

Effectively training professional caregivers to screen and refer persons with dementia and intellectual/developmental disability

Effectively training professional caregivers to screen and refer persons with dementia and intellectual/developmental disability

Journal article

Evaluation of National Task Group-Early Detection Screen for Dementia: Sensitivity to 'mild cognitive impairment' in Adults with Down Syndrome

Evaluation of National Task Group-Early Detection Screen for Dementia: Sensitivity to 'mild cognitive impairment' in Adults with Down Syndrome

Journal Article

Evaluation of the National Task Group-Early Detection Screen for Dementia: Sensitivity to 'Mild Cognitive Impairment' in Adults with Down Syndrome

Evaluation of the National Task Group-Early Detection Screen for Dementia: Sensitivity to 'Mild Cognitive Impairment' in Adults with Down Syndrome

Journal article

Future Planning Guidebook for Older Caregivers of Adults with  Intellectual and Developmental Disabilities

Future Planning Guidebook for Older Caregivers of Adults with Intellectual and Developmental Disabilities

Resource Booklet

Importance in Overall Health in Adults with Intellectual Disability and Dementia

Importance in Overall Health in Adults with Intellectual Disability and Dementia

Educational Presentation

Informant-based Assessment Instruments for Dementia in People with Intellectual Disability: A Systematic Review and Standardised Evaluation

Informant-based Assessment Instruments for Dementia in People with Intellectual Disability: A Systematic Review and Standardised Evaluation

Journal Article

NADD Bulletin article on NTG-EDSD

NADD Bulletin article on NTG-EDSD

Journal article

NTG-EDSD - Book Chapter

NTG-EDSD - Book Chapter

Book chapter

Physician's Quick Guide for Using the NTG-EDSD

Physician's Quick Guide for Using the NTG-EDSD

Resource document

Practical applications of the NTG-EDSD for screening adults with intellectual disability for dementia: A German-language version feasibility study 

Practical applications of the NTG-EDSD for screening adults with intellectual disability for dementia: A German-language version feasibility study 

Journal article

Screening for Dementia in Persons with an Intellectual Developmental Disability

Screening for Dementia in Persons with an Intellectual Developmental Disability

Resource document

Screening for dementia among adults with intellectual disability: Outcomes from a pilot study

Screening for dementia among adults with intellectual disability: Outcomes from a pilot study

Journal article

The Alzheimer's Biomarker Consortium‐Down Syndrome: Rationale and methodology

The Alzheimer's Biomarker Consortium‐Down Syndrome: Rationale and methodology

Journal article

Training professional caregivers to screen for report of cognitive changes in persons with intellectual disability

Training professional caregivers to screen for report of cognitive changes in persons with intellectual disability

Journal Article

Usefulness of the NTG-EDSD: Evaluating the Validity of a Screening Tool for Dementia in Adults with Intellectual Disabilities

Usefulness of the NTG-EDSD: Evaluating the Validity of a Screening Tool for Dementia in Adults with Intellectual Disabilities

Presentation

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