Family Studies

Eastern Michigan University Study of Family Experiences

The 'CAREGIVER BURDEN, SOCIAL SUPPORT, AND QUALITY OF LIFE AMONG CAREGIVERS OF INDIVIDUALS WITH INTELLECTUAL DISABILITIES AND DEMENTIA PROJECT' is a novel study being undertaken to collect stories about family caregiving experiences with providing supports to adults with intellectual disability and dementia. The study's principal investigator is Dr. Christina Marsack-Topolewski, a noted researcher in the area of family caregiving.

Dr. Marsack-Topolewski and her team are looking for adults who are 18 years of age or older and a caregiver of an individual with both an intellectual disability AND dementia. If you meet these criteria, you are eligible to participate in this study. Interested participants will be entered into a raffle to receive a $20 gift card. The study will be conducted using an online survey -- which may take up to 20 minutes. For those participants who consent, a follow-up interview may be conducted via a telephone/zoom call or a safe-mode in-person to obtain more detailed information regarding caregiving experiences and perceptions of family quality of life.

To anonymously take the survey, go to this link.   If you agree to participate in the interview phase, the study workers will enroll and contact you after your consent is given at the end of the survey.


To read more about the study, click here