Epilepsy, Intellectual Disability, and Dementia
New! Webinar Series
Epilepsy in Adults with Intellectual and Developmental Disabilities
If you work with adults who may have been diagnosed with seizures or other similar neurological complications this series may be for you. Although neurological complications are common throughout the lifespan, one key symptom of the presence of Alzheimer’s disease is late-onset seizures (or epilepsy). Providing high level diagnostic and treatments for these conditions is a major challenge in many health services. While pediatric specialists are usually aware of the consequences of these complications, most adult oriented healthcare providers may not be. This series explores the nature of epilepsy and how to address treatment and interventions when seizures present in adults with intellectual disabilities.
Dr. Seth Keller, a noted specialty neurologist and the Co-President of the NTG has developed a webinar series to examine various facets of neurological complications prevalent in adults with intellectual disabilities. Run in conjunction with the American Academy of Developmental Medicine and Dentistry and the Neurology Consortium of Intellectual and Developmental Disability Practitioners, this series will examine numerous related neurological conditions and the nature of negative health and personal consequences not only for the individuals affected, but also to their supports.
This series of nine webinars will run throughout the fall and winter of 2022-23. There is no cost to register for any or all of these webinars and if wanted, CME credits are available. The series is underwritten by unrestricted educational grants from several pharmaceutical and device companies.
#1 Overview and History of Epilepsy in Adults with an Intellectual or Developmental Disability
Presenters: Seth M. Keller, MD, Neurology Associates of South Jersey, Lumberton, NJ USA; Christine Linehan, PhD, Associate Professor, School of Psychology, University College Dublin, Ireland; Grant Turek, MD, Child Neurologist, Dayton Children's Hospital, OH USA
Content: This session will serve to introduce and provide an overview of the series on epilepsy in adults with intellectual and developmental disabilities. The presentation will include a panel of advocacy leaders in the field, including a representative of the International Bureau for Epilepsy and the Epilepsy Foundation. The speakers will highlight the current disparities in care and inequities in epilepsy supports and services to those adults with intellectual and developmental disabilities, and to help ensure participation in the remaining series of webinars and therefore advance knowledge and expertise.
Date: November 2, 2022 – 12:00 to 13:00 US Eastern DST [16:00 GMT]
#2 Genetics and Epilepsy in Adults with Intellectual and Developmental Disabilities
Presenter: Danielle Andrade, MD, MSc, FRCPC - Dravet Syndrome Foundation and the University of Toronto, Canada
Content: This session will provide an overview of appropriate genetic testing in adults with epilepsy and intellectual and developmental disabilities and xplain why it is essential to understand what is the underlying cause of the neurodevelopmental etiology. Discussed will be how Improving epilepsy related healthcare outcomes in adults with epilepsy and intellectual and developmental is effective if state of the art genetics is used to improve epilepsy care outcomes.
#3 Assessment and Diagnostics in Adults with Intellectual and Developmental Disabilities
Presenter: Sookyong Koh, MD, PhD - Medical Center at Children's Hospital & Medical Center, Omaha, NE USA
Content: This session will provide an overview of appropriate neurodiagnostic assessment and testing in adults with epilepsy and intellectual and developmental disabilities. The various unique issues and challenges in care will be reviewed including potential communication barriers, data collection, compliance and caregiver needs and supports. The common occurrence of behavior comorbidities will also be reviewed. Improve epilepsy related healthcare outcomes in adults with epilepsy and intellectual and developmental can be done by using the latest neurodiagnostic techniques. Overcoming and adapting to innate challenges are often associated with those with intellectual and developmental disabilities and their caregivers will improve.
#4 Pharmacologic Care including Cannabinoids in Adults with Intellectual and Developmental Disabilities
Presenter: Christian Brandt, MD, Bethel Epilepsy Centre, General Epileptology, and Coordination Centre for Studies in Epileptology (KSE), Bielefeld, Germany
Content: This session will cover an overview of appropriate anti-epileptic drug (AED) selection in adults with intellectual disabilities and epilepsy. Concerns of polypharmacy, toxicity, and behavioral co-morbidities care will be reviewed. The importance of documentation of care outcomes will be discussed. The high rate of medical refractoriness and risk for SUDEP will be reviewed. Improved epilepsy related healthcare outcomes in adults with intellectual and development disabilities with a history of seizures can be often accomplished using the latest anti-epileptic drug therapy options. Practitioners can provide a systematic and person-centered approach in the selection and usage of AED’s including cannabinoids.
#5 Nutrition and Dietary Practices in Adults with Intellectual and Developmental Disabilities
Presenter: Mackenzie Cervenka, MD, Professor of Neurology, Johns Hopkins Medicine, Baltimore, MD USA
Content: This session will provide an overview of nutritional concerns, including obesity, in adults and various developmental disabilities who are diagnosed with epilepsy and to discuss dietary management of epilepsy, including the ketogenic diet. Often epilepsy related healthcare outcomes can be improved using the latest update in nutritional advances.
# 6 Neuromodulation and Surgical Care in Adults with Intellectual and Developmental Disabilities
Presenter: Eric B. Geller, MD – Neurologist, Saint Barnabas Medical Center, Livingston, NJ USA
Content: This session will offer an overview of appropriate consideration for neuromodulation other surgical options in adults with epilepsy who also have an intellectual disability. The importance of determining when individuals are medically refractory and the need to consider alternative modes of epilepsy therapeutics will be discussed. Reviewed will be the risks and benefits to these various procedures. It is important to improve epilepsy related healthcare outcomes in adults with epilepsy using the latest neuromodulation and surgical options.
#7 Behavioral Co-Morbidities in Adults with Intellectual and Developmental Disabilities
Presenter: Michael Kerr, MD - Clinical Professor Emeritus, Cardiff University, and Dravet Syndrome UK, Chesterfield, United Kingdom
Content: This session will cover various appropriate person-centered approaches to behavioral issues in adults with epilepsy who have an intellectual disability. The issues and concerns of associated behavioral challenges including autism will be reviewed. Covered also will be the issues and concerns of concomitant pharmacologic management of behavior and epilepsy. A goal is to improve epilepsy and behavioral related healthcare outcomes in adults with epilepsy by using appropriate psychotherapeutic, behavioral, and pharmacologic options.
#8 Transition of Care in from Pediatrics to Adult Medicine for Adult with Intellectual and Developmental Disabilities
Presenter: Lawrence W. Brown, MD - Associate Professor of Neurology and Pediatrics, Children's Hospital of Philadelphia, PA USA
Content: This session provides an overview of appropriate considerations for the medical and health care of in people with epilepsy and intellectual disabilities as they transition from pediatric care to adult care, as well as they progressive age into geriatric care. Transition of care from the emergency department and the hospital setting will be discussed, as will the 'hand-over' to adult neurology. The importance of data collection and communication will be reviewed. Improving epilepsy related healthcare outcomes in adults with epilepsy can be optimized by an effective process of transitioning to adult healthcare providers.
#9 Nursing Care in Adults with Intellectual and Developmental Disabilities
Presenter: Edward Jones [tbc]
Objective: This session will focus particularly on overviewing specific appropriate nursing considerations in providing therapeutic care for adults with intellectual disabilities diagnosed with epilepsy. The role of specialty nurses as a key care provider will be explored. Improving epilepsy related healthcare outcomes in adults with epilepsy can be aided by using the latest nursing therapeutic techniques and protocols. The important role that nurses play in care outcomes will be explored.